Patient Involvement
Relevant, tagged site content:
Blog entry
Research conducted by members of the AnNex team has highlighted the growing number of initiatives designed to engage and involve people with health conditions with the research that affects them.
A lot of guidance has been written about how to actively involve patients and the public in clinical research, and evidence is growing about the value of this.
Earlier this year, the MRC Brain Network Dynamic Unit invited lay members of local branches of Parkinson’s UK to visit the unit
Animal research can be a controversial issue. It involves complex questions across science, health, animal welfare, and ethics and is the subject of ongoing social and scientific debate.
Publications
This report contributes to a growing body of advice around how to involve people affected by health conditions in laboratory or biomedical research. It draws on work completed as part of the Animal Research Nexus Programme (2017-2023) and brings together our findings with resources to help people who might be involved in conversations around the use of animals in laboratory research in the UK.
A good culture of care, empowering individuals within organisations to care and reflecting wider social expectations about care, is now a well-documented aspiration in managing practices of laboratory animal research and establishing priorities for patient and public health. However, there is little attention to how different institutional cultures of care interact and what happens to the accountabilities of caring roles and the entanglements of caring practices when institutional cultures meet.
Part of the Animal Research Nexus programme involves exploring the changing relationships between people affected by different health conditions and animal research. Our new chapter explores how ‘patient voices’ are represented around animal research. And we’ve made it into a graphic abstract...
Part of the Animal Research Nexus programme involves exploring the changing relationships between people affected by different health conditions and animal research. This chapter explores how ‘patient voices’ are represented around animal research.
This report discusses the different expectations people have of Patient and Public involvement and Engagement with animal research. We review the opportunities and challenges across perspectives. We also identify preliminary recommendations for enabling more meaningful involvement.
This report provides a record of the discussions at a workshop which brought together lay members from across the biomedical research sector to discuss the opportunities and challenges of shaping biomedical research.
This poster explains our research exploring how patients, publics, and practitioners might engage meaningfully around animal researc and identifying how people affected by health conditions might contribute to the research practices that potentially involve animal research.
Announcements
Are you interested in what conversations with patients or carers might offer your research? Or do you think patient involvement with biomedical research is not a current priority?
Events
We are holding a workshop in April 2019 to bring together scientists and stakeholders to progress practices that will enable people to have more comfortable and productive conversations about animal research within the context of patient and publi
Project partners
The Medical Research Council Brain Network Dynamics Unit at the University of Oxford opened in April 2015.